TBCD is rare, but that doesn't mean support has to be. Our community is small but mighty, and everyone who joins makes the fight a little stronger. We're here - let's pull together. We welcome parents, family members, researchers, HCPs, and people passionate about changing the lives of people with TBCD to join us.
We're not officially affiliated with this group, but it's a great starting place if you're joining the community. Most of the known families in the TBCD community are members, so it's a great way to get in touch.