Community

Join the Community

TBCD is rare, but that doesn't mean support has to be. Our community is small but mighty, and everyone who joins makes the fight a little stronger. We're here - let's pull together. We welcome parents, family members, researchers, HCPs, and people passionate about changing the lives of people with TBCD to join us.

Connect on Facebook

Connect on Facebook

We're not officially affiliated with this group, but it's a great starting place if you're joining the community. Most of the known families in the TBCD community are members, so it's a great way to get in touch.

TBCD Gene Facebook Group
Join the Slack Channel

Join the Slack Channel

Connect and chat with other TBCD families in real time, or join our monthly meetings.

Join our Slack channel
Join The TBCD Foundation on Facebook

Join The TBCD Foundation on Facebook

This is the official Facebook group for The TBCD Foundation. Want to get more involved? Come here to help organize, advocate, and be part of the mission.

Join the official The TBCD Foundation group

Recent Posts

Did you Know?
The TBCD gene was only recently discovered. It is suspected that there are many undiagnosed individuals with TBCD Disorder. TBCD Disorder is also sometimes referred to as PEBAT.
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