Newly Diagnosed

Welcome to the community!

Newly Diagnosed?

We know you're probably grappling with a lot of emotions right now. Are you frantically reading everything on the internet? Looking to connect with other families? Wondering what this means for your child, and what can be done? Start here. We're here for you.

Connect on Facebook

Connect on Facebook

We're not officially affiliated with this group, but it's a great starting place if you're joining the community. Most of the known families in the TBCD community are members, so it's a great way to get in touch.

TBCD Gene Facebook Group
Join the Slack Channel

Join the Slack Channel

Connect and chat with other TBCD families in real time, or join our monthly meetings.

Join our Slack channel

Recent Posts

Did you Know?
The TBCD gene was only recently discovered. It is suspected that there are many undiagnosed individuals with TBCD Disorder. TBCD Disorder is also sometimes referred to as PEBAT.
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